Going the Distance for Duchenne!
Posted on June 19, 2016
Going the Distance!
Inspiring teens bike 500 miles for
Boys Living with Duchenne Muscular Dystrophy
Kingston, MA – A group of inspirational young people with the Jett Foundation (a national non-profit committed to finding a cure for Duchenne muscular dystrophy) are cycling through Massachusetts, New York and Vermont this summer. Duchenne is a devastating muscle wasting disorder that affects 20,000 boys in the U.S. To support the JettRide lease visit http://www.firstgiving.com/11421/jettride-2016.
“What these kids are doing is amazing and inspirational, they are true leaders at such a young age” said Cindy Quitzau, whose son, Cal has Duchenne and whose daughter Emily is one of this year’s JettRiders. “These JettRiders are literally spreading the word about Duchenne across the Northeast and giving hope for Cal and thousands of boys like him who are affected by this devastating disorder.”
The Riders will begin their journey on July 22, 2016 in Sutton, MA through New York via Lake George and looping through Bennington, VT and back to MA on July 30th. “Biking 50 to 70 miles a day sounds really tough, but then I think of my brother Cal and know I’m doing this for him!” says Emily.
The cyclists travel from Massachusetts to Vermont in an effort to raise money and awareness for Duchenne Muscular Dystrophy (Duchenne) – the most common lethal disorder diagnosed during childhood today. The ride also gives a voice to the riders, most of whom have a sibling living with Duchenne. The JettRide allows them to bond with one another while trying to improve quality of life and care for their brothers, friends and cousins.
“The JettRiders get their inspiration from their brothers, friends and cousins who have Duchenne and lack the muscle strength to ride a bike,” said Jett Foundation Executive Director Christine McSherry. “Jett Foundation provides the opportunity; it is the riders who make the impact by challenging themselves and challenging Duchenne.”
The group will be biking for 8 days, logging 500 miles raising awareness and urgently needed funds while uniting families and communities affected by Duchenne nationwide. In order to participate in the trip, each rider raised at least $2,500 to help fund the trip costs and Duchenne research efforts nationwide.
To date, since 2007, JettRiders have ridden a combined $130,000 miles, enough to circle the earth five times!
Based in Kingston, MA, the Jett Foundation is a non-profit organization dedicated to increasing worldwide awareness of Duchenne Muscular Dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for the disease and ensure that affected children will have the opportunity to enjoy a full life. After 15 years of steady progress in the fight against this progressive neuromuscular disorder, the Jett Foundation is known throughout the country as a leader, funding promising research transformative adaptive camp programs and as a fierce advocate in this battle against Duchenne.
If you would like to donate or need more information contact Michelle Burt, JettRide Coordinator 781-585-5566 or firstname.lastname@example.org.